Filter
Filter by medical condition
Filter by country
Search
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Cauda Equina Syndrome
Spinal Cord Injury
Epilepsy
Anxiety
Depression

Whispers of Courage: Redefining Independence in the Face of Challenges

"I had a slow-onset spinal cord injury. I had sciatic pain for 5 months before I couldn’t walk at all. Then I needed emergency surgery."

Hypermobile Ehlers-Danlos syndrome (hEDS)
Postural Tachycardia Syndrome (POTS)
Fibromyalgia
Chronic Fatigue
Endometriosis

Finding Hope Amidst the Challenges: My Battle with hEDS, POTS, and Multiple Chronic Conditions

“I was born chronically ill, so I have always been sick..."

POTS
MCAS
Chronic Gastritis
Endometriosis

Juggling My Health with POTS, MCAS, Chronic Gastritis, and Endometriosis

“I first noticed something was wrong with my health when I almost fainted after having a hot shower before work. My parents had to call the ambulance, but my observations came out fine…”

Spinal Muscular Atrophy

Shaping Change Through Challenges: My Life with Spinal Muscular Atrophy Type 3

“I had symptoms as a child, but they were never picked up. I had knee issues so they always said that nothing could be done until I was 18 and that I would need surgery. This prevented any diagnosis of some of the more pressing issues…”

Sturge-Weber Syndrome
Port-Wine Stain Birthmarks
Glaucoma

Through the Eyes of Sturge-Weber Syndrome, Port-Wine Stains, and Glaucoma

“The laser treatment was especially challenging as for the first few weeks my face was very sore, swollen, and purple, which did cause people to stare even more than they usually do, as I didn’t look “normal” …”

Severe Aplastic Anemia

My Story of Navigating the Uncharted Territory of Severe Aplastic Anemia

“A lot of it was difficult - the chemotherapy and radiation, the weekly eye injections, the bone marrow biopsies, suffering unexpected seizures as a side effect of my medication, and much more…”

Sickle Cell Disease

My Silent Struggles: Living with Sickle Cell Disease

“Sickle cell is a beast. Getting up every day is truly a fight in itself. You can be doing everything right, and yet the pain can still come and wreak havoc that is excruciating and indescribable...”

Ankylosing Spondylitis
Rosacea
Fibromyalgia
Fibroids
Hysterectomy

A Queer Guide to Chronic Illness: My Rollercoaster Journey with Chronic Pain, Fibroids, Hysterectomy, and More

“I cried. I literally was just overwhelmed that someone finally told me something was up and that they had found something…”

Spinal AVM
Spinal Arteriovenous Malformation (AVM)

Embracing the New Normal: My Life with Spinal AVM

“It all happened so fast. The whole experience felt surreal yet frightening with the battery of tests I had to undergo...”

Ankylosing Spondylitis
Hashimoto's Disease

Unveiling the Invisible: My Journey with Ankylosing Spondylitis and Hashimoto's Disease

“I went to multiple physicians. In the beginning, all the doctors told me it was "all in my head" and that nothing was wrong with me. As a physician myself, it was crushing that none of the doctors took my symptoms seriously initially…”

Dysautonomia
Functional neurological disorder
hEDS
Small fiber polyneuropathy

Navigating the Uncharted: My Journey with Nerve-related Diagnoses

“My condition has significantly impacted my daily life. I have transitioned from being someone who was mostly at home to someone who has spent almost a year hospitalized...”

Ehlers-Danlos Syndrome
Primary Immune Deficiency
Selective Antibody Deficiency
and more...

Beyond Ehlers-Danlos Syndrome: Life with Multiple Co-occurring Disorders

"It took 17 years to get a diagnosis of Ehlers-Danlos Syndrome. From there, more and more diagnoses have and continue to roll in..."

No results to show.