Patient voices from around the world

Every story is different. But they all have one thing in common: the challenge of living with a medical condition.

“All the doctors told me it was "all in my head" and that nothing was wrong with me.”

"Never let anyone have the power to make you feel broken or unworthy of care."

“It’s okay to hurt.”

“All the doctors told me it was "all in my head" and that nothing was wrong with me.”

"Never let anyone have the power to make you feel broken or unworthy of care."

“It’s okay to hurt.”

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Ankylosing Spondylitis

Hashimoto's Disease

Unveiling the Invisible: My Journey with Ankylosing Spondylitis and Hashimoto's Disease

“I went to multiple physicians. In the beginning, all the doctors told me it was "all in my head" and that nothing was wrong with me. As a physician myself, it was crushing that none of the doctors took my symptoms seriously initially…”

Suhina Singh

CEO & Co-founder of Jonda Health

Diagnosed 3 years ago

Ehlers-Danlos Syndrome

Primary Immune Deficiency

Selective Antibody Deficiency

and more...

Beyond Ehlers-Danlos Syndrome: Life with Multiple Co-occurring Disorders

"It took 17 years to get a diagnosis of Ehlers-Danlos Syndrome. From there, more and more diagnoses have and continue to roll in..."

Mars Lombardi

(they/them)

Diagnosed 7 years ago

No results to show.

Patient voices from around the world

Unveiling the Invisible: My Journey with Ankylosing Spondylitis and Hashimoto's Disease

Beyond Ehlers-Danlos Syndrome: Life with Multiple Co-occurring Disorders

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